SusanPEDPT
72 posts
Aug 31, 2009
6:59 PM
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Working with a child who has SMA-1. It has been quite exciting to see the some progress in her ability to use her arms and legs much more than I had ever hoped to see. We were initially using the FAB5 to help her maintain range. Just because she had almost no control in her neck, entire trunk or extremities, she was losing range of motion due to tightening fascia. Since she couldn't move or change position she was getting fixed in the limited resting positions she was tolerating to be able to breathe. We began to notice that when she was assisted to move on the good side for whatever range we were looking to offer her EG: hip/knee flexion, the same side started to develop active control. Yes she is still very limited, but she is having a ball batting at toys, patting her cat when she comes over to snuggle against her, flexing her ankle and toes to try to tickle mother's hand when mother holds her leg up. The mobility and strength are developing hand in hand. This little angel is now having fun while we use TMR to help her expand her play options.
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